Thursday, April 28, 2016

A Plea for Our Super Hero: Cystic Fibrosis Needs A Cure

Ever known a super hero?
He always has a great attitude.
And wears his vest twice a day at least!

Ours is a little guy, with blonde curls, a bright smile and eyes that sparkle at the mention of his friends, his God, and his family. Also add ice cream and baseball to that list.

My family is close friends with his family. The second grade super hero has battled Cystic Fibrosis since he was days old. Yesterday, our super hero went in for his eighth surgery. 8 surgeries in 8 years? The kid is amazing. He is the life of the party and has enough energy and joy for two boys!

You would never tell that he is sick. That his lungs don't work properly, and that he spends his mornings and nights day strapped to a machine to keep his chances of health high. Nope, this kid is an amazing little guy and a great testimony to living life to the full e.v.e.r.y d.a.y.

My nine year old, T, loves hanging out with him. He recently hooked up our Wii at their house the night before the surgery so our super hero would have something fun to do while he recovered. 

T has come to me twice now in tears that he wants to cure his friend. That he just wants him to grow old and have kids. That the doctors need to work harder, and that he wants to give all his money to the CF foundation.
Dickens and our super hero!

"What if the doctors are missing something? What if it's simple?"

"I want to find a cure."

Maybe God is planting a calling in my child? Maybe he will be that doctor? Maybe he will cure his friend? One thing is for sure, he has a heart bigger than his nine year old body and feels things deeply. Especially for those he cares about deeply.

T and his super hero with lil bro. No touching water,  just pretending.
C.F. kids can't risk the bacteria in lake water. 

One day, God will use that for amazing things.

Maybe T will be C.F.'s worst enemy? Maybe my son will become a super hero with a cure. Only in the shadow of our super hero today.

A future super hero?
Right now though, I hope that everyone who crosses our super hero's path, feels the urgency to make that advancement in medicine, that need for scientific research, that chance for a super hero boy to grow into a super hero grandpa.

Today, the median survival age for a person with C.F. is close to 40. That's not acceptable. In a time as advanced as we are scientifically and medically, we need to fight harder.

Learn more about Cystic Fibrosis HERE 

Check out your area for the Great Strides walk near you. I know lots of people out there enjoy walking and it with a purpose! 

This is my plea as a mom of a kid who has a huge heart and love for his friend, and also, as a friend of a family who live with C.F. every moment and make the most of life every day.

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